Skip to main content
search

THIS REPOSITORY IS UNDER REVIEW FOR POTENTIAL MODIFICATION IN COMPLIANCE WITH ADMINISTRATION DIRECTIVES View Portal

Kids First Kids 2
Pediatric Patient

THE VALUE OF KIDS FIRST

KIDS COME FIRST IN SCIENTIFIC RESEARCH

Thousands of children are diagnosed with cancer and congenital disorders each year, impacting families emotionally and financially. The Gabriella Miller Kids First Pediatric Research Program (Kids First), funded  and administered by the National Institutes of Health (NIH) Common Fund, aims to alleviate some of that hardship by improving how we diagnose, treat, and eventually eliminate these threats. This program is a valuable resource for researchers and is a critical investment in pediatric research.

The Kids First Data Resource Center (Kids First DRC) provides robust genetic and clinical data for pediatric cancer and congenital disorders. Kids First data is accessible to researchers worldwide, free of charge, to help us understand these diseases better.

While this valuable program is funded through 2024, Kids First needs continued support to pursue its essential work well into the future.

DISCOVER A NEW APPROACH TO RESEARCH

Kids First is the leading global contributor of pediatric studies for research

Icon of files uploading to the cloud
36
STUDIES
Icon of cursor pointing to a folder on a computer monitor
1,000
+
DATA ACCESS REQUESTS
Icon of a computer monitor displaying a heart beat
6,500
+
USERS
icon of a patient with chemical bond icons
147
k+
SAMPLES
icon of a computer monitor and stethoscope
1.25
M+
FILES
Icon of the globe with a map marker
36,000
+
PATIENT AND FAMILY PARTICIPANTS
Gabriella Miller

STOP TALKING, START DOING

Gabriella’s Story

The Gabriella Miller Kids First Research Act was enacted in April 2014, less than six months after 10-year-old child cancer research advocate Gabriella Miller died from an inoperable brain tumor.

Her efforts to raise childhood cancer awareness, and its connection to congenital disorders, raised hundreds of thousands of dollars for children’s cancer charities. Through her passionate advocacy, Congress passed the Gabriella Miller Kids First Research Act to direct funding into the NIH Common Fund over ten years to support pediatric research.

Gabriella’s mother, Ellyn Miller, continues her daughter’s work to demand better treatments and cures for kids through the Smashing Walnuts Foundation.

GET THE LATEST KIDS FIRST STUDIES

Sign up to receive updates and new data announcements from the Gabriella Miller Kids First Data Resource Center

JOIN OUR ONLINE COMMUNITY

Check out the latest news and updates from the Kids First DRC

Follow @kidsfirstdrc

Email info@kidsfirstdrc.org

Medical researcher reviewing digital x-rays on a monitor

News & Articles

May 19, 2025 in Articles

Kids First: A New Vision for Pediatric Research

In the world of childhood cancer and congenital disorder research, ten years is more than a milestone—it’s a movement. Each year in the United States, nearly 16,000 children are diagnosed…
Read More
May 12, 2025 in Press

First-Ever Long Read Datasets Added to Two Kids First Studies

This article was originally published as a news release via EurekAlert This new Kids First data creates a fuller understanding of how genetics contributes to childhood cancers and congenital disorders,…
Read More
February 19, 2025 in Articles

Cross-Institution Database Drives New Pediatric Research Opportunity

Childhood cancer research has taken a monumental step forward with the launch of the Childhood Cancer Data Initiative (CCDI), a groundbreaking effort spearheaded by the National Cancer Institute (NCI). Childhood…
Read More
February 4, 2025 in Articles

New Data Sets from NIH Kids First Program Accelerate Rare Childhood Disease Research

This article was published as a news release on EurekAlert, shared on Feb 5, 2025.  The new Kids First datasets advance our understanding of how genetics contribute to childhood cancers…
Read More
Close Menu